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(Jackie2)
Member since '10
Jackie2
status: Been doing well. The 'bump' by the nose doesn't bother me any more as I have drastically reduced my physical activity. And when I exercise...
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It's all 'in my head'!
'Smoke' and other changes in senses
Posted by: Jackie2 on March 13, 2011 at 4:23PM UEDT

Just wanted to get an idea about how many of our members have experienced strange things in their senses...

Long, long time ago, before the huge tumor was discovered in the center of my brain, I began to complain about the TV being too loud, the lights being too bright, ... etc. What I enjoyed most was to curl in my bed and read myself to sleep...

I've been smelling 'smoke' for a couple of years now. And it urned out one of the tumors has been growing. I looked up the A&P book and found the three olfactory areas are located right around/below the ventricle where my tumors are located.

Was joking with friends on FB that several hundreds years back I could have been in great danger of getting burned alive on the stake.

I've also had a tiny earache and a running nose - all just on the right side! Will get evaluated next Friday by an ENT surgeon who's also a neurologist. Be interesting to hear what he has to say.

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(2) Comments
Posted by: Violet Tigress on March 19, 2011 3:14AM UEDT
I've experienced lots of strange things over the years....

Posted by: Jackie2 on March 19, 2011 8:17PM UEDT
Thanks for charing, Violet.

The ENT surgeon/neurologist numbed my nostrills and dropped a tiny scope down to look at the inside of my throat. I think it's the first time I had experienced this type of procedure. [Heaven knows how many medical 'procedures' I've been through! :)]

He's going to order some more tests. Since he's also specialized in skull base surgery, at first I thought I was referred to him to see if I needed surgery. But he said it was just to check my ENT functions. I guess the radiation oncologist still wanted to try the new Novalis TX on me... :)

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