Getting Started
Posted by:
Patient Services Team on
February 4, 2010 at
6:45PM UEDT
My.BrainTumorCommunity.Org is a place to get connected with people like you. We’ve created this space specifically for people affected by brain tumors. It’s a place to ask a question, lend support, build friendships and interact with others.
Here are a few items to help you get started:
Register!
Click on the blue “Community” button and click where it says “Register now”. Complete the registration form and click “Submit”. You will then receive an email that contains your username and password (please keep this for your records). Follow the instructions to log in and start interacting with others in the community!
Create a Profile!
Your profile allows you to share information about yourself with others. To access your profile, go to your “My Stuff” page and click on “Profile” in the menu on the left (about halfway down). This will take you to the “Profile Info” page, where you can choose a screenname and fill out as much or as little as you would like. You can control who sees your profile by clicking on “Account Settings” at the top of the page. By default, profiles are marked as “Public” when you first sign up.
Explore!
You’re all set. Take some time to explore the community. Here are some things you might find of interest:
- NBTS HQ Blog – The "Headquarters Blog" button takes you to the official NBTS blog, written by Patient Services staff. We created this blog to share information about topics that are important to you. Each week, we’ll focus on a new topic and feature stories from patients and caregivers, Q&A articles with health professionals, cool resources we want to share, and more. Feel free to leave a comment on the blog – we want to hear from you!
- Discussion Forums – The “Discuss” button will take you to our Discussion Forums (also known as message boards). Discussion Forums are a space where you can read, post, and reply to messages and questions from other users. Post a question, offer a suggestion, or get the conversation started about something that you care about!
- My Stuff Extras – The “My Stuff” page is your home base for managing your profile, your blog, and your connections to others (messages, friends, groups, etc.). Change your profile or upload photos. Create your own blog and send the link to people you know. Invite others to join the community or send them a friend request. This is your space!
As you explore the site, feel free to refer to our list of Frequently Asked Questions for additional details.
Tell us what you think!
This is YOUR community, and we want to hear from you. We invite you to email us at info@braintumor.org with your questions, comments, and suggestions. We look forward to your feedback!
(2) Comments
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Posted by: flipper on March 16, 2010 4:14PM UEDT
Lying on the warm white sand in Bimini with the lulling of the waves, distant calypso music wafting through the palm trees, I am sipping a Mai Tai as I gaze out at the turquoise cove - it's paradise - thank you for the mini vacation, NBTS team!
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Posted by: gail on August 10, 2010 11:00AM UEDT
when a glioblastoma that has been in remission re occurs and spreads to the other side of the brain...how long is it before it actually kills the person?
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