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Resources: Survivorship Care Plan

Posted by: LaurenR at NBTS on April 20, 2011 at 12:39PM UEDT

Every day we get calls from people who have finished treatment and ask us, “What now?” In recent years, survivorship has received an increasing amount of attention in terms of the needs of this community and the care that is available to them. Here is a list of resources that we hope will help you.

Information Resources

Living Beyond Cancer: Helps survivors to develop the skills necessary to adjust to life after treatment.

Institute of Medicine: Has provided leadership in promoting the use of a Survivorship Care Plan. This fact sheet focuses on the standards of care, elements of a care plan, and the types of questions that survivors should ask their doctor.

Practical Tips

Visit the Lance Armstrong Foundation’s Survivorship Care Plan to access their worksheets and guidebooks.

Survivorship guidebooks provide calendars and space for journaling to help patients keep track of their journey.

Resources for Coping

Writing Through Cancer: a website designed for anyone who has been touched by cancer who finds peace and hope through writing prompts as a means of coping.

Story Corner at NBTS gives you an opportunity to share your story with the brain tumor community at large. Also, being a member of this online community allows you to help others and help yourself.

What methods have helped you get through your journey of survivorship?

Lauren Rettberg, MPH
Health Information Specialist, Patient Services

Image: mophard.net

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