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(Patient Services Team)
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This blog is written by the NBTS Patient Services Team. If you would like more information, please call the Patient Services Line at 800.934.2873 or email info@braintumor.org.
Q & A: Preventing caregiver burnout
Posted by: Tamar at NBTS on May 24, 2011 at 12:48PM UEDT
Question:
I’m a caregiver for my daughter. I spend so much time taking care of her (and everything else around the house!) that I rarely have time for myself. I’m starting to burnout, and I don’t know what to do. Do you have any suggestions?

Answer:
I bet, like many caregivers, you've heard it a hundred times: “Be sure to take care of yourself” ... and when you hear it, you think, “Yeah, okay -- easier said than done!”

You are now in the role of a “caregiver” for your loved one, but it’s important to remember who you are first: a spouse, parent, sibling, son, daughter…YOU. It’s incredibly difficult when caring for a brain tumor patient to juggle work, family, billing offices, medical appointments, personal obligations – let alone take some time for yourself.

Research has shown that people who care for others have a much higher risk of developing significant health problems. So, how can you try to take care of yourself while taking care of a loved one?

1. Exercise is often mentioned as important to self-care. But if you didn’t have time to make it to the gym before the “new normal” of life after the tumor, it may seem daunting to make time for it now. Here’s a secret: you don’t have to go to the gym! A 10 minute walk around the block will not only allow you to get some fresh air, it will help give your brain and your senses a break. The change of scenery will also help lower stress and anxiety.

2. The frequent medical appointments for your loved one may get in the way of your own medical check ups. When was the last time you saw your doctor? If you can’t remember, it’s time to make an appointment for a check up!

3. Think back prior to your loved one’s diagnosis - what did you enjoy that you miss doing now? Is there a way to still incorporate your interests? Re-engaging in old hobbies or going on outings with friends can make a world of difference -- not just for you, but also for how you treat and care for your loved one. You may not be able to continue going on week-long vacations, but how about a cup of coffee or a quick trip over to a friend’s house?

4. One of the biggest roadblocks for caregivers is the hesitation to ask for help. There’s something about us humans that makes us think we have to do it all. If you want to be an effective caregiver, recognizing the need for help is important. Having an army of people will help you and your family make it through this physically, emotionally, and hopefully with some laughs along the way.

To learn more about caring for YOURself, keep an eye out for resources tomorrow.

Have a helpful tip for other caregivers out there? Leave a comment and let us know!

Tamar Sekayan, MSW
Assistant Director of Patient Services

Note: originally posted in Feb '10
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