NBTS Headquarters Blog
We know that caregivers of brain tumor patients do a Herculean task---whether being the second set of eyes and ears at the doctor, shuttling their loved one back and forth to radiation, helping with household tasks, or all the late night worrying and information seeking that seems commonly a part of this brain tumor experience. In general, they are tasked with everything from wound care to buoying spirits and they are often given little if any information to prepare them for this task.
National Brain Tumor Society has developed a caregiver training workshop over the past 7 years and offers it across the US and also online. This week we’ll be sharing some tips and resources from that program with all of you. We’ll also ask you to share tips and experiences you have had with other caregivers.
What are some tips you can share with other caregivers—things that saved you time, money, worry, or all of the above? What systems helped you keep up with everything? Leave a comment.
Harriet Patterson, MPH
Director of Patient Services
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Posted by: MtnGoatJoe on August 16, 2010 1:46PM UEDT
I stopped working out when my wife got sick. But eventually I realized that exercise helps my sanity. It helps me deal with stress, and our YMCA gave us a financial scholarship, which reduced our dues to an affordable amount. They have daycare while we workout, so my wife doesn't have to take care our daughter while I'm busy. It's really helped us find some balance in our lives.
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Posted by: Harriet at NBTS on August 17, 2010 11:22AM UEDT
Thanks so much for sharing this Joe. You are doing a great thing by keeping up the exercising. That is so important for stress management, mood stabilization, and your own health. You are a great example for others. Thanks so much for sharing your experience with our readers! (and Kudos on finding out about the Y scholarship...lots of local Ys offer this but you sometimes have to ask so that is a good tip for others as well).
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