Oligodendroglioma

Oligodendroglioma http://my.braintumorcommunity.org/discussions/oligodendroglioma en-us http://my.braintumorcommunity.org/discussions/oligodendroglioma/2012/04/27/prognosis Prognosis http://my.braintumorcommunity.org/discussions/oligodendroglioma/2012/04/27/prognosis Fri, 27 Apr 2012 11:01:23 GMT jpsister http://my.braintumorcommunity.org/discussions/oligodendroglioma/2012/04/05/new-website New website http://my.braintumorcommunity.org/discussions/oligodendroglioma/2012/04/05/new-website
Thanks!]]> Thu, 05 Apr 2012 05:49:02 GMT docsbydocs http://my.braintumorcommunity.org/discussions/oligodendroglioma/2012/03/31/clean-mri- Clean MRI !! http://my.braintumorcommunity.org/discussions/oligodendroglioma/2012/03/31/clean-mri-
Blessings to you all,

Julie

Mom of Scott/31yrs (for 2 more weeks)
seizure/Nov. 2011
dx/oligodendroglioma/right frontal lobe
craniotomy/12/23/11
gross total resection
final path report/oligo/grade 2/with 1p 19q deletions
monitor w/MRI's every 3 months
1/6/12 major reconstructive shoulder surgery due to fall during unwitnessed grand mal seizure due to tumor
Barnes Jewish Hospital-Siteman Cancer Center- St. Louis, MO]]> Sat, 31 Mar 2012 23:55:04 GMT kdgteacher http://my.braintumorcommunity.org/discussions/oligodendroglioma/2012/03/28/inoperable-tumors Inoperable tumors http://my.braintumorcommunity.org/discussions/oligodendroglioma/2012/03/28/inoperable-tumors Wed, 28 Mar 2012 23:56:27 GMT billyg http://my.braintumorcommunity.org/discussions/oligodendroglioma/2012/03/02/vets-and-brain-tumors vets and brain tumors http://my.braintumorcommunity.org/discussions/oligodendroglioma/2012/03/02/vets-and-brain-tumors Sat, 03 Mar 2012 04:36:11 GMT kdgteacher http://my.braintumorcommunity.org/discussions/oligodendroglioma/2012/02/29/anyone-getting-temodar-on-medicare Anyone getting Temodar on Medicare? http://my.braintumorcommunity.org/discussions/oligodendroglioma/2012/02/29/anyone-getting-temodar-on-medicare
On a separate issue I read the generic form for Temodar has been blocked from US sales until late 2013. ]]> Wed, 29 Feb 2012 22:34:52 GMT billyg http://my.braintumorcommunity.org/discussions/oligodendroglioma/2012/02/24/need-more-info Need more info. http://my.braintumorcommunity.org/discussions/oligodendroglioma/2012/02/24/need-more-info ]]> Fri, 24 Feb 2012 20:27:08 GMT dolphin http://my.braintumorcommunity.org/discussions/oligodendroglioma/2012/02/16/oligodendroglioma oligodendroglioma http://my.braintumorcommunity.org/discussions/oligodendroglioma/2012/02/16/oligodendroglioma Pls. let us know maybe there is a way to check this out and do testing and ways beyond testing as I recall having it...to eliminate in advance these chromosones?

]]> Fri, 17 Feb 2012 01:43:44 GMT Anonymous http://my.braintumorcommunity.org/discussions/oligodendroglioma/2012/02/16/hope Hope http://my.braintumorcommunity.org/discussions/oligodendroglioma/2012/02/16/hope Thu, 16 Feb 2012 11:24:25 GMT Tad http://my.braintumorcommunity.org/discussions/oligodendroglioma/2012/01/31/alternative-treatment Alternative Treatment? http://my.braintumorcommunity.org/discussions/oligodendroglioma/2012/01/31/alternative-treatment
I have been researching alternative doctors and Dr. Burzynski treats the whole body in a way that targets the cancer without harming any of your healthy cells. He has been through a great deal of scrutiny from other doctors and the FDA. Yet he has patients and patients' family that lined up and stood up for him. These people don't have to undergo the radiation or the extreme chemo and live healthy, full lives.

I have been praying for an answer to this situation that still seems very shocking and this seems like what I have been looking for. The only problem is it is not covered by insurance and it can get costly, but how can u put a value on a human life? Would love to hear back from people that have gone to the Burzynski Clinic or another alternative treatment center or who have considered these options.]]> Wed, 01 Feb 2012 00:54:45 GMT jpsister http://my.braintumorcommunity.org/discussions/oligodendroglioma/2012/01/05/temodar Temodar http://my.braintumorcommunity.org/discussions/oligodendroglioma/2012/01/05/temodar Fri, 06 Jan 2012 02:37:28 GMT awagner http://my.braintumorcommunity.org/discussions/oligodendroglioma/2011/12/17/six-months-in----two-questions-for-my-fellow-oligo Six months in . . . two questions for my fellow Oligos http://my.braintumorcommunity.org/discussions/oligodendroglioma/2011/12/17/six-months-in----two-questions-for-my-fellow-oligo
Question One: My docs (NIH, here in NoVA, and at UVA) say that while probably most/much of my cancer will have been killed by the radiation, there will always be something there. I've read your postings, and some of you have written that your tumors were 100 resected. Are your docs saying that you're pretty much "clean" and good to go, notwithstanding the common-sense visits to the MRI every 3 to 6 months? There's been no recurrence?

Question Two: About six weeks after the end of my radiation, around Halloween, I started feeling side effects from getting hit with those 5400 centigrays of radiation in my head. Most of the side effects have been light and have passed (such as tiredness and a sensation of stuffiness in my sinuses), but I still have a sensation of dis-equilibrium that my docs told me to treat with Suda-Fed. I also feel a bit groggy and tongue-tied in the mornings, although usually I feel much better and sharper in the afternoon. What has been your experience in the post-radiation period? What else must I brace myself for in coming weeks/months? I've read the literature about the sub-acute period, but I wanted to hear your individual stories.

Regards and thanks, Terry
]]> Sat, 17 Dec 2011 17:10:49 GMT Terry Bishop http://my.braintumorcommunity.org/discussions/oligodendroglioma/2011/12/07/please-advice Please advice! http://my.braintumorcommunity.org/discussions/oligodendroglioma/2011/12/07/please-advice I have an oligioastrosytoma (mostly oligio) somewhere between II and IIi, with the deletions. I had amazing surgery with a total ressection last Septemeber. Then I was on 6 weeks of Temodar while I had radiation. Folliwing radiation, I am about to start my 12th dose of Temodar (5 days on 28 day off). I've done great in terms of my blood work but, despite taking 5 anti-nausea drugs I am horribly nauseaus. I basically don't eat for about 5 days and then for 2 I can introduce soup.

My doctor has said that it might be worth giving my bone marrow a break (though my platetels have always been high). She said that we don't want to knock it out when we might need it later. All my scans are perfect. I have heard of people taking Temodar for 24 months so am very confused.

Please help!
Katie ]]> Wed, 07 Dec 2011 23:32:23 GMT KATHLEEN COGAN http://my.braintumorcommunity.org/discussions/oligodendroglioma/2011/11/08/benign-brain-tumor-support-group benign brain tumor support group http://my.braintumorcommunity.org/discussions/oligodendroglioma/2011/11/08/benign-brain-tumor-support-group Tue, 08 Nov 2011 16:17:31 GMT runner http://my.braintumorcommunity.org/discussions/oligodendroglioma/2011/11/07/changing-interests Changing interests http://my.braintumorcommunity.org/discussions/oligodendroglioma/2011/11/07/changing-interests Mon, 07 Nov 2011 17:31:28 GMT runner