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    <title>Meningioma</title>
    <link>http://my.braintumorcommunity.org/discussions/meningioma</link>
    <description><![CDATA[]]></description>
    <language>en-us</language>
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      <guid isPermaLink="true">http://my.braintumorcommunity.org/discussions/meningioma/2012/05/14/help-still-have-tumor-no-insurance</guid>
      <title>help: still have tumor no insurance</title>
      <link>http://my.braintumorcommunity.org/discussions/meningioma/2012/05/14/help-still-have-tumor-no-insurance</link>
      <description><![CDATA[Please can anyone advise me? &nbsp;I was supposed to get Proton Therapy for the rest of my brain tumor that is wrapped around an artery. &nbsp;I have had two surgeries and this was how I was to get rid of the last part of the tumor. &nbsp;However, the Proton therapy facility stated, &#39;This is expensive and you have no insurance.&#39; The doctor who performed the surgery is now with another group and the receptionist will not even allow a phone conversastion with him. &nbsp;I am experiencing headaches, dizzy spells, blurred vision etc. &nbsp;I know I need more help but don&#39;t know where to turn. &nbsp;I have applied for disability, but have not heard back. &nbsp;Can anyone advise me? &nbsp;]]></description>
      <pubDate>Mon, 14 May 2012 17:56:53 GMT</pubDate>
      <dc:creator>Anonymous</dc:creator>
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      <guid isPermaLink="true">http://my.braintumorcommunity.org/discussions/meningioma/2012/05/07/frequent-numbness-in-right-arm-and-hand</guid>
      <title>frequent numbness in right arm and hand</title>
      <link>http://my.braintumorcommunity.org/discussions/meningioma/2012/05/07/frequent-numbness-in-right-arm-and-hand</link>
      <description><![CDATA[<span style="font-size:11px;">Had a large grade 2 tumor removed Sept. 2011and received seven weeks of radiation. &nbsp;The tumor was pressing on my right frontal lobe. &nbsp;Recovery is still going well except for occasional scar pain and headaches but lately I have been having constant numbness in my right arm and hand and only occasionally in my left arm and hand. &nbsp;It gets so bad I can&#39;t lift anything or even feel the steering wheel. &nbsp;Has anyone had this? &nbsp;I am getting worried so I made an appt. with my doctor. &nbsp;So far I have had two MRI&#39;s and they were clear.</span>]]></description>
      <pubDate>Tue, 08 May 2012 00:59:45 GMT</pubDate>
      <dc:creator>Genny Ramsey</dc:creator>
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      <guid isPermaLink="true">http://my.braintumorcommunity.org/discussions/meningioma/2012/04/26/questions</guid>
      <title>Questions</title>
      <link>http://my.braintumorcommunity.org/discussions/meningioma/2012/04/26/questions</link>
      <description><![CDATA[Hi all, new to this wonderful group.<br />
<br />
In early Feb, after fighting what I thought was the flu for 4 days, my husband took me to the&nbsp;doctor where they immediately sent me to the&nbsp;ER for fluid because I was dehydrated.&nbsp; As they administered 2 bags of fluid, my blood pressure rose to dangerous levels prompting the&nbsp;doctor to order a CAT scan.&nbsp; Our lives became a whirlwind then as they diagnosed me with what we would find out to be a grapefruit size tumor in the lower&nbsp;right&nbsp;rear of the head putting pressure on my cerebellum.&nbsp; The following Friday, they were able to successfully remove it and for the most part, recovery has been great.&nbsp;<br />
<br />
I was hoping I&nbsp;could get a few answers regarding the rest of recovery:<br />
<br />
The doctor&nbsp;told me when I was released that I would experience sharp pains.&nbsp; Until recently, my head&nbsp;was numb&nbsp;(1/3 of it still is) but the&nbsp;past 2 weeks, I get&nbsp;VERY sharp&nbsp;pains in my head.&nbsp; They don&#39;t last&nbsp;but 10-15 seconds but are&nbsp;disruptive.&nbsp; Has&nbsp;anyone else&nbsp;had these and for how long?<br />
<br />
<br />
Secondly, since the tumor put pressure on the cerebellum,&nbsp; I get dizzy and lose my balance very easily, especially as I tire.&nbsp; Can anyone help with the length of recovery or how long to expect these sysmptons to last?&nbsp;&nbsp; I am back to work part-time but still not driving so I am relying on my husband and kids to be my chauffeur and I sometimes feel like a bother.&nbsp;<br />
<br />
I am very THANKFUL and BLESSED with how everything transpired and will definitely enjoy reading other success stories and be of help with my experiences if I can.&nbsp;<br />
<br />
Thanks<br />
Veronica Lewis]]></description>
      <pubDate>Fri, 27 Apr 2012 01:02:18 GMT</pubDate>
      <dc:creator>VeronicaLynn0228</dc:creator>
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      <guid isPermaLink="true">http://my.braintumorcommunity.org/discussions/meningioma/2012/04/15/brand-new-zipperhead</guid>
      <title>Brand New Zipperhead</title>
      <link>http://my.braintumorcommunity.org/discussions/meningioma/2012/04/15/brand-new-zipperhead</link>
      <description><![CDATA[I am a 65 year old healthy male from the Baltimore, MD area.&nbsp; After receiving a&nbsp;meningioma diagnosis in January 2012&nbsp;I had a&nbsp;7 hour&nbsp;surgery at University Hospital in Baltimore on 10 April 2012.&nbsp; Doctor Howard M. Eisenberg, my new best friend, and his young group of geniuses removed a 2 x 4 cm Right Posterior Parietal Parasagittal Meningioma.&nbsp; I was released on Friday, 13 April.&nbsp; With ample time between the diagnosis and scheduling of surgery I had plenty of time to research info.&nbsp; Trouble is,&nbsp;each case has its own characteristics, thus&nbsp;I found it hare to nail down a meningioma &#39;just like mine&#39;.&nbsp; Prior to diagnosis I had none of the list of classical symptoms&nbsp;on some web sites ( i.e.&nbsp;eyesight, leg weakness, headaches).&nbsp;&nbsp;I did have three vasovagal syncope events spread out over a&nbsp;three year period but&nbsp;have not been positively linked to the behavior of the tumor.&nbsp; When the last syncope event occurred in January 2012, I did go to the&nbsp;ER where&nbsp;the meningioma&nbsp;was revealed via CAT SCAN.&nbsp;&nbsp; One interesting twist prior to surgery was scheduling of a final angiogram and possible attempt to embolize the tumor.&nbsp; I checked in to University Hospital in Baltimore&nbsp;on Monday, 9 April for these pre-surgical procedures.&nbsp; I understood that the Angiogram was to map the vascularity of the tumor and the embolization was to de-vascularize the tumor, making surgery less difficult the next day.&nbsp; This is where God intervened.&nbsp; I had read several sources that described parasagittal meningioma&nbsp;as very vascular with SSS, Cortical and other&nbsp;smaller veins potentially involved.&nbsp; When the&nbsp;Interventional Radiologist, Dr. Ghandi observed the Angiogram, he found only a single small feeder vein to the tumor, rendering&nbsp;an embolization unnecessary.&nbsp; He left &nbsp;the small&nbsp;vein intact for Dr. Eisenberg&nbsp;the next day.&nbsp;&nbsp;An operation that could have required several units of blood now required none.&nbsp;&nbsp; Back home now I am at rest and will do essentially nothing for six weeks.&nbsp; I go back on 24 April to have the zipper removed.&nbsp; I am taking Kepra twice a day and an occasional Tylenol.&nbsp; There is some residual tumor material left&nbsp;which will be addressed&nbsp;in coming months with the GammaKnife.&nbsp; Prior to surgery I told Dr. Eisenberg that I loved to Golf, Fish, and play guitar.&nbsp;&nbsp;I can still play guitar!........golfing and fishing are weeks down the road.&nbsp; I harbor no illusions about the future but as I sit here this evening I am amazed at what has transpired in the past few days and what I am able to do today.&nbsp;&nbsp; God has truly blessed me beyond any expectations.<br />
]]></description>
      <pubDate>Mon, 16 Apr 2012 00:45:55 GMT</pubDate>
      <dc:creator>Anonymous</dc:creator>
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      <guid isPermaLink="true">http://my.braintumorcommunity.org/discussions/meningioma/2012/04/10/my-brothers-meningioma</guid>
      <title>My Brother's Meningioma</title>
      <link>http://my.braintumorcommunity.org/discussions/meningioma/2012/04/10/my-brothers-meningioma</link>
      <description><![CDATA[Last June, my brother was diagnosed with a meningioma in the back of his head. &nbsp;He underwent a gamma knife procedure in Dallas which was supposed to kill the tumor. &nbsp;Since that time, he has practically lost his ability to do things he used to do with no problem; i.e., using the computer, using his cell phone, paying his bills, etc. &nbsp;He was forced to quit his job and has had to move in with me and will soon have to declare bankruptcy. &nbsp;He has lost his ability to function normally. &nbsp;He&#39;s had 2 subsequent MRI&#39;s in Dallas and both neurologists said the tumor hasn&#39;t grown any more. &nbsp;Neiither of those doctors have offered any suggestions for what is causing these other problems and frankly don&#39;t seem to care.<br />
<br />
We both wish he would have had the tumor surgically removed. &nbsp;Anyone have any thoughts to share on this issue?]]></description>
      <pubDate>Tue, 10 Apr 2012 16:58:36 GMT</pubDate>
      <dc:creator>Anonymous</dc:creator>
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      <guid isPermaLink="true">http://my.braintumorcommunity.org/discussions/meningioma/2012/04/07/my-father-has-swelling-a-year-after-surgery</guid>
      <title>My father has swelling a year after surgery</title>
      <link>http://my.braintumorcommunity.org/discussions/meningioma/2012/04/07/my-father-has-swelling-a-year-after-surgery</link>
      <description><![CDATA[My father was diagnosed with an atypical meningioma last year. He had surgery almost a year ago, and has had radiation to try and contain the 20% remaining tumor. We just took my father to the hospital this past Friday, because we noticed he was not acting like himself. His speech was incomprehensible and he was not understanding anything. After a CT Scan, the neurologist saw some swelling, and immediately put him on steroids again. They also said they saw something on the CT scan, but need to do an MRI. Has anyone ever had swelling a year after surgery? Or has anyone been diagnosed with an atypical meningiona, that has returned after a year? We have to wait to hear results, because of the holiday, and the wait is killing me. Thanks]]></description>
      <pubDate>Sat, 07 Apr 2012 22:48:55 GMT</pubDate>
      <dc:creator>nikki 78</dc:creator>
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      <guid isPermaLink="true">http://my.braintumorcommunity.org/discussions/meningioma/2012/04/06/genetic-propensity-to-meningeoma</guid>
      <title>Genetic propensity to Meningeoma</title>
      <link>http://my.braintumorcommunity.org/discussions/meningioma/2012/04/06/genetic-propensity-to-meningeoma</link>
      <description><![CDATA[I am very interested to know how often Meningeoma occurs in siblings or offspring. &nbsp;i had a meningeoma removed from C 3 &nbsp;in the spine in 2005 aged 62 and my brother has just been diagnosed with a meningeoma on the bass of his brain aged 65. If anyone has any answers I would appreciate one.]]></description>
      <pubDate>Sat, 07 Apr 2012 02:37:16 GMT</pubDate>
      <dc:creator>Anonymous</dc:creator>
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      <guid isPermaLink="true">http://my.braintumorcommunity.org/discussions/meningioma/2012/04/05/just-had-surgery----24-year-old-with-meningioma</guid>
      <title>Just had surgery -- 24 year old with meningioma</title>
      <link>http://my.braintumorcommunity.org/discussions/meningioma/2012/04/05/just-had-surgery----24-year-old-with-meningioma</link>
      <description><![CDATA[Hi all,

Just had surgery this past Thursday to remove meningioma from my right frontal lobe of my brain. It was completely removed. Kind of scary to be only 24 and have this ordeal happen. Looking for stories and strength. What are the chances of it coming back? How long is recovery? Thanks!]]></description>
      <pubDate>Thu, 05 Apr 2012 21:36:44 GMT</pubDate>
      <dc:creator>Anonymous</dc:creator>
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      <guid isPermaLink="true">http://my.braintumorcommunity.org/discussions/meningioma/2012/04/05/before-surgery</guid>
      <title>Before Surgery</title>
      <link>http://my.braintumorcommunity.org/discussions/meningioma/2012/04/05/before-surgery</link>
      <description><![CDATA[My mom is 81 years old and a tumor was just diagnosed via an MRI after she had a seizure. My dad wants her to have the surgery, but my brother and I are concerned about her recovery. We do not live near our parents and would need to have a caregiver in the home.<br />
<br />
My mom is very much concerned with the recovery process and how it will impact her daily living. My dad is less independent and I worry that if my mom is unable to recovery well it will take a toll on both of them. I realize her age is a huge factor, but I am concerned with the risks and the outcome of her mental state afterwards. I see many of you are stating how it has drained you and I know that would probably cause her to be depressed because she is very active within her social groups etc.<br />
<br />
If anyone has any suggestions I would appreciate them.]]></description>
      <pubDate>Thu, 05 Apr 2012 13:14:27 GMT</pubDate>
      <dc:creator>Anonymous</dc:creator>
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      <guid isPermaLink="true">http://my.braintumorcommunity.org/discussions/meningioma/2012/04/05/new-website</guid>
      <title>New website</title>
      <link>http://my.braintumorcommunity.org/discussions/meningioma/2012/04/05/new-website</link>
      <description><![CDATA[Hello, to everyone on this forum. I am a neuro-oncologist, and I see patients every day in my clinic with brain and spine tumors. I wanted an outlet to provide my own content on brain and spine tumors, and so I created a website, docsbydocs. I am writing content for our site at the moment, and will recruit others in the field of neuro-oncology to do the same. If you are looking for specific, topic-driven content for brain and spine tumors, please check out my site at www.docsbydocs.com. It&#39;s completely free. We also take requests for articles that we would write and post to our site. You can reach us at info@docsbydocs.com, on Twitter at @docsbydocs or on Facebook. I hope we can help provide all information that you may seek.<br />
<br />
Thanks!]]></description>
      <pubDate>Thu, 05 Apr 2012 05:46:20 GMT</pubDate>
      <dc:creator>docsbydocs</dc:creator>
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      <guid isPermaLink="true">http://my.braintumorcommunity.org/discussions/meningioma/2012/03/29/skull-base-meningioma-treatment</guid>
      <title>Skull-base meningioma treatment</title>
      <link>http://my.braintumorcommunity.org/discussions/meningioma/2012/03/29/skull-base-meningioma-treatment</link>
      <description><![CDATA[Hi. I was diagnosed just three weeks ago with a skull-base meningioma (lower righthand side of my head) after seeing a doctor for some double vision and headaches. It&#39;s 2.5 cm and I&#39;ve been told in a very difficult place for surgery (near brain stem). However, there is a neurosurgeon in my city who takes out skull-base tumors through the nose - not done by many surgeons and relatively new. Has anyone else had this done? My other option looks to be radiation or wait-and-watch. Conventional surgery, I&#39;m told, not an option. Any ideas for me? thank you]]></description>
      <pubDate>Thu, 29 Mar 2012 22:32:54 GMT</pubDate>
      <dc:creator>Anonymous</dc:creator>
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      <guid isPermaLink="true">http://my.braintumorcommunity.org/discussions/meningioma/2012/03/27/diagnosed-with-meningioma-do-i-need-to-have-surger</guid>
      <title>Diagnosed with meningioma, do I need to have surgery</title>
      <link>http://my.braintumorcommunity.org/discussions/meningioma/2012/03/27/diagnosed-with-meningioma-do-i-need-to-have-surger</link>
      <description><![CDATA[I was diagnosed with a 2cm meningioma in the right front convexity of my brain.&nbsp; According to 2 neurosurgeons I&#39;ve seen, it&#39;s fairly easy to get to (as it&#39;s not embedded in my brain but between the brain and skull) and surgery seems like the best option.&nbsp; I&#39;ve never had surgery and brain surgery seems terrifying.&nbsp; I&#39;m going to my 3rd and final neurosurgeon on Monday.&nbsp; I&#39;m scared of side effects of surgery and wonder if maybe I should &#39;wait and see&#39; if it grows, research Gamma Knife or stereotactic therapy.&nbsp; Anyone&nbsp;have&nbsp;any thoughts&nbsp;and let me know how their surgery went for removal?&nbsp; ]]></description>
      <pubDate>Tue, 27 Mar 2012 23:06:36 GMT</pubDate>
      <dc:creator>Anonymous</dc:creator>
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      <guid isPermaLink="true">http://my.braintumorcommunity.org/discussions/meningioma/2012/03/27/movement-disorders-following-removal-of-meningioma</guid>
      <title>Movement Disorders following removal of meningioma</title>
      <link>http://my.braintumorcommunity.org/discussions/meningioma/2012/03/27/movement-disorders-following-removal-of-meningioma</link>
      <description><![CDATA[I was diagnosed with a meningioma on January 11th of this year, and had surgery for removal of the tumor on January 31st.&nbsp; Surgery appeared to go well with 98% removal.&nbsp; However, I soon found out I was unable to walk.&nbsp; This got worse and worse and I was in hospital and rehab hospital for a month before the doctors decided therapy was not appropriate at this time.&nbsp; I have what they think is a movement disorder.&nbsp; My legs, arms, and trunk involuntarily stiffen, kick out, up etc. randomly.&nbsp; I have tremors in my hand and uncontrollable movements such as pounding table, raising arm over head, etc.&nbsp; Has anyone had any experience with this?&nbsp; I have an appointment to see a neurologist who specializes in movement disorders but have to wait over a month to get in.&nbsp; I am taking Keppra although initial thought is that I am NOT having seizures.&nbsp; This is all very discouraging.&nbsp; Any input or sharing will be appreciated.]]></description>
      <pubDate>Tue, 27 Mar 2012 19:29:08 GMT</pubDate>
      <dc:creator>Anonymous</dc:creator>
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      <guid isPermaLink="true">http://my.braintumorcommunity.org/discussions/meningioma/2012/03/24/2yr-survivor</guid>
      <title>2yr Survivor</title>
      <link>http://my.braintumorcommunity.org/discussions/meningioma/2012/03/24/2yr-survivor</link>
      <description><![CDATA[I am so glad that I am not alone in this matter, I am a two yr meningioma surgery survivor and everyone judges me by my looks but now how i feel, I had a difficult time getting through this surgery I am a single mom and I had to jump back into the swing of things almost immediate after I came home from the hospital which was only 3 days. I wish people would realize that brain surgery is extremely traumatizing and you just don&#39;t snap out of it. I am now facing fibromyalgia since my surgery, and there are moments when i cannot remember things like I used to. and there is not a day that goes by that my scar from the crainiotomy does not hurt, does anyone suffer from this?]]></description>
      <pubDate>Sun, 25 Mar 2012 02:31:14 GMT</pubDate>
      <dc:creator>suzyq282</dc:creator>
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      <guid isPermaLink="true">http://my.braintumorcommunity.org/discussions/meningioma/2012/03/18/i-too-just-found-out-that-i-have-a-growth</guid>
      <title>I too just found out that I have a growth</title>
      <link>http://my.braintumorcommunity.org/discussions/meningioma/2012/03/18/i-too-just-found-out-that-i-have-a-growth</link>
      <description><![CDATA[I just found out that I have a growth in my meningioma area. The specialist did not seem to be too concerned over it.&nbsp; ]]></description>
      <pubDate>Mon, 19 Mar 2012 01:35:38 GMT</pubDate>
      <dc:creator>Athena</dc:creator>
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