http://my.braintumorcommunity.org/discussions/low-grade-glioma en-us http://my.braintumorcommunity.org/discussions/low-grade-glioma/2012/04/08/husband-diagnosed http://my.braintumorcommunity.org/discussions/low-grade-glioma/2012/04/08/husband-diagnosed Sun, 08 Apr 2012 05:34:37 GMT catmother (arlene) http://my.braintumorcommunity.org/discussions/low-grade-glioma/2012/04/05/new-website http://my.braintumorcommunity.org/discussions/low-grade-glioma/2012/04/05/new-website
Thanks!]]> Thu, 05 Apr 2012 05:49:27 GMT docsbydocs http://my.braintumorcommunity.org/discussions/low-grade-glioma/2012/03/29/want-to-connect-with-those-with-brain-stem-low-gra http://my.braintumorcommunity.org/discussions/low-grade-glioma/2012/03/29/want-to-connect-with-those-with-brain-stem-low-gra Thu, 29 Mar 2012 18:59:22 GMT Christie http://my.braintumorcommunity.org/discussions/low-grade-glioma/2012/01/26/brain-stem-glioma http://my.braintumorcommunity.org/discussions/low-grade-glioma/2012/01/26/brain-stem-glioma
I'm hoping to connect with others who may be in (or have been in) a similar boat as I am. I am 25 years old, and was recently diagnosed with a probable low grade glioma at the cervicomedullary junction (the lower part of my medulla and the upper part of my cervical spinal cord). It was missed on an MRI in 2006 because it is so small and low, so I have had it for at least 5 years. The lesion has a small nodule that enhances with contrast, and a non-enhancing cyst. My MRI in 2006 was not done with contrast so we don't know if the enhancement was present then, but otherwise, it seems to be the same size and the radiologist feels it has been stable since then.

This tumor was found accidentally and I am asymptomatic, so my NO's believe it is a pediatric tumor that I've had for quite some type. My spectroscopy was slightly abnormal, so they believe it is low grade. I haven't had my follow up appointment yet so all I've had to go off is the MRI report, but I am unsure if they believe it is a pilocytic astrocytoma (since it has a nodule and a cyst) or a diffuse astrocytoma (since there is some swelling/displacement). I see a doctor locally in upstate NY and Dr. Pannullo at NY Presbyterian/Cornell in NYC. They are both great but I feel frustrated to have hardly any answers.

At this time, they are advocating a watch and wait stance, since it seems to be stable and they don't want to radiate and cause issues. It is too small to access surgically. I will be getting repeat MRI's every 3 months for now.

I know I have a lot to be optimistic about... my age, my lack of symptoms, the low grade nature of the tumor... but I still find myself struggling quite a bit. I'd love to hear from any others with BSG's. Cervicomedullary BSG's are very rare in adults, so the lack of knowledge and info is so frustrating.

Thanks so much -

Ashley]]> Thu, 26 Jan 2012 15:34:34 GMT alp0786 http://my.braintumorcommunity.org/discussions/low-grade-glioma/2012/01/08/thalamic-tumor http://my.braintumorcommunity.org/discussions/low-grade-glioma/2012/01/08/thalamic-tumor Sun, 08 Jan 2012 22:11:11 GMT Anonymous http://my.braintumorcommunity.org/discussions/low-grade-glioma/2011/12/05/ketogenic-diet http://my.braintumorcommunity.org/discussions/low-grade-glioma/2011/12/05/ketogenic-diet Mon, 05 Dec 2011 16:11:14 GMT andy http://my.braintumorcommunity.org/discussions/low-grade-glioma/2011/10/24/long-term-survivorship-without-radiation http://my.braintumorcommunity.org/discussions/low-grade-glioma/2011/10/24/long-term-survivorship-without-radiation
As my cancer has recurred yet again I am being pushed to consider radiation.  Because my cancer is in the front lobes of my brain I will likely have to stop working if I decide to have radiation.  I am hoping to put off radiation for another decade which will put me closer to retirement age.]]> Mon, 24 Oct 2011 17:42:40 GMT LMarie http://my.braintumorcommunity.org/discussions/low-grade-glioma/2011/09/14/tectal-plate-lesions http://my.braintumorcommunity.org/discussions/low-grade-glioma/2011/09/14/tectal-plate-lesions Wed, 14 Sep 2011 14:54:47 GMT poppybella http://my.braintumorcommunity.org/discussions/low-grade-glioma/2011/06/23/waiting-on-pathology-report-how-long http://my.braintumorcommunity.org/discussions/low-grade-glioma/2011/06/23/waiting-on-pathology-report-how-long I just had and posterior fossa mass Resection last week and am waiting for the pathology report.
I know it will be uphill for a while but was wondering if anyone has had any of the same difficulties after surgery last so long.
I expect a headache due to surgery but should it hurt so bad even with pain mess.
Also cannot walk straight at all and can't see past 10 ft at all.
Told my dr and asked about physical therapy and maybe a wheelchair to assist me getting around in public places because I just don't seem to be able to keepy feet steady enough to walk more than a couple of feet.He only says we will see in a week or two.Am I rushing things to much?]]> Thu, 23 Jun 2011 11:27:42 GMT Alpine303 http://my.braintumorcommunity.org/discussions/low-grade-glioma/2011/05/04/would-you-have-a-biopsy http://my.braintumorcommunity.org/discussions/low-grade-glioma/2011/05/04/would-you-have-a-biopsy One was wait and see the other which he suggest highly is biopsy.
That makes me a little nervous but im think I will let him do it because of his great reparation .
My only concern is it's location which he says is deep in my cerebellum.
Anyone gone through this before?]]> Wed, 04 May 2011 17:18:31 GMT Alpine303 http://my.braintumorcommunity.org/discussions/low-grade-glioma/2011/04/28/first-postingnew-member-with-tumor http://my.braintumorcommunity.org/discussions/low-grade-glioma/2011/04/28/first-postingnew-member-with-tumor
To avoid going through a biopsy and losing more motor skills because of it, I went through a spectroscopy MRI to help the doctor further his diagnosis. I just got the results yesterday which showed not only the original lesion, but another on The Left side of my brain. I am not having motor skills function loss on my right side however, and I believe the first lesion is my main concern.the weakness on my left side is progressing and the neurosurgeon has diagnosed these lesions as progressive gliomas.

What can I expect next? What treatments are available? I am willing to do anything but I don't really know what to do next. Of course the doctor wants to do the biopsy anyway leases these tumors are inoperable – so why bother?

Suggestions greatly appreciated
Paul in San Diego]]> Thu, 28 Apr 2011 15:39:16 GMT SanDiegoPaul http://my.braintumorcommunity.org/discussions/low-grade-glioma/2011/04/26/low-grade-glioma http://my.braintumorcommunity.org/discussions/low-grade-glioma/2011/04/26/low-grade-glioma
This is my first time here.Back in Sept 2010
I was diagnosed with a low grade glioma
On my cerebellum.Since then I have had three more
MRI s first showed no changed the second was due
To a fall at work and the third last week
The only thing I can get from my Dr. Is he
Wants to send me to a neurosurgeon

Can anyone helpe understand why the more questions I ask
The less answers I seem to get.]]> Tue, 26 Apr 2011 16:42:34 GMT Alpine303 http://my.braintumorcommunity.org/discussions/low-grade-glioma/2011/03/30/re-previous-post http://my.braintumorcommunity.org/discussions/low-grade-glioma/2011/03/30/re-previous-post Wed, 30 Mar 2011 21:38:39 GMT sheila1999 http://my.braintumorcommunity.org/discussions/low-grade-glioma/2011/03/30/what-really-is-oglioastrocytoma http://my.braintumorcommunity.org/discussions/low-grade-glioma/2011/03/30/what-really-is-oglioastrocytoma Wed, 30 Mar 2011 21:35:07 GMT sheila1999 http://my.braintumorcommunity.org/discussions/low-grade-glioma/2011/03/29/mystery-glioma http://my.braintumorcommunity.org/discussions/low-grade-glioma/2011/03/29/mystery-glioma Wed, 30 Mar 2011 00:30:14 GMT Krissalee