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    <title>Ependymoma</title>
    <link>http://my.braintumorcommunity.org/discussions/ependymoma</link>
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      <guid isPermaLink="true">http://my.braintumorcommunity.org/discussions/ependymoma/2012/05/03/which-germ-layer-the-ependyma-cells-are-derived-fr</guid>
      <title>Which germ layer the ependyma cells are derived from?</title>
      <link>http://my.braintumorcommunity.org/discussions/ependymoma/2012/05/03/which-germ-layer-the-ependyma-cells-are-derived-fr</link>
      <description><![CDATA[Please help me to find out from&nbsp;Which germ layer the ependyma cells are derived.<br />
Thanks&nbsp;]]></description>
      <pubDate>Thu, 03 May 2012 09:52:13 GMT</pubDate>
      <dc:creator>Anonymous</dc:creator>
    </item>
    <item>
      <guid isPermaLink="true">http://my.braintumorcommunity.org/discussions/ependymoma/2012/01/17/anyone-else-struggling-to-deal-with-their-kids-hav</guid>
      <title>anyone else struggling to deal with their kids  having ependymoma</title>
      <link>http://my.braintumorcommunity.org/discussions/ependymoma/2012/01/17/anyone-else-struggling-to-deal-with-their-kids-hav</link>
      <description><![CDATA[I am finding it had to cope, my 4 month baby girl has ependymoma. its fast growing so she is having intensive chemotheraphy as to young for radiotheraphy.It developed while she was in the womb and kept growing. she has had 2 operations, 1 to drain a cyst the other to partly remove some of the tumour. My daught is only child i got, i was trying 5 yrs to get her. i feel that i should have done something sooner, or im being punished for something. I am now on anti-depressents and finding it hard at time. everytime i google her tumour all i hear is death no survivor stories. I just hoping there are some people to talk to in simular situation]]></description>
      <pubDate>Tue, 17 Jan 2012 22:36:20 GMT</pubDate>
      <dc:creator>JadeTat</dc:creator>
    </item>
    <item>
      <guid isPermaLink="true">http://my.braintumorcommunity.org/discussions/ependymoma/2011/01/19/anaplastic-ependymoma-experience-in-adults</guid>
      <title>Anaplastic Ependymoma experience in adults</title>
      <link>http://my.braintumorcommunity.org/discussions/ependymoma/2011/01/19/anaplastic-ependymoma-experience-in-adults</link>
      <description><![CDATA[Hello. I am looking for information about persons who have been diagnosed with anaplastic ependymoma and their experiences with surgery, treatment, and life. My long-term boyfriend and father of my son has had two tumors treated. The first occurance was a partial resection followed by chemo and radiation. The second recurred 4 years later and was surgically completely resected (approx. ten months ago). He has been having seizures and intense head pressure which has affected his remaining vision very negatively. The seizures were never present until this month. The MRI shows no redevelopment of these cancer types (the first tumor was called a PNET --we never got clarification on the first tumor type being either correctly or incorrectly diagnosed). Our current neuro-oncologist suggests that it isn't really an issue (we changed facilities after the second surgery). There are apparently minute differences. We have a 16-month old son who loves his daddy immeasurably. Has anyone had an experience with these tumor types?]]></description>
      <pubDate>Wed, 19 Jan 2011 21:35:08 GMT</pubDate>
      <dc:creator>Anonymous</dc:creator>
    </item>
    <item>
      <guid isPermaLink="true">http://my.braintumorcommunity.org/discussions/ependymoma/2010/12/13/post-surgery-complications</guid>
      <title>Post surgery complications</title>
      <link>http://my.braintumorcommunity.org/discussions/ependymoma/2010/12/13/post-surgery-complications</link>
      <description><![CDATA[Hi, I'm new to this site. It has been over six months since my surgery and my boyfriend has urged me to connect eith others in similar situations to help me cope with the deficits surgery has left me with.  Ill start at the beginning: I was diagnosed with an ependymoma of the 4th ventricle in May 2010. A full ressction of the tumor was completed with in two weeks of being diagnosed.  Unfortunately I was in ICU for a month and an in-patient in a rehabilitation facility for an additional month.  Surgery left me without the ability to speak, eat, have a gag reflex, severe double vision (with vertical and horizontal nystagmus), issues with my blood pressure. <br>

<br>

It has been just over six months and I am walking and in speech, vision and physical therapy. I still have double vision, tracheostomy tube as well as a peg tube. I'm trying to connect with others and see how they've dealt with these setbacks and if they have reached that light at the end of the tunnel? My hospital stay was supposed to be 3-5 days and be able to return to work in 30 days. That is far from my reality and I have difficulty dealing with the feeling of 'life is moving on without me'.]]></description>
      <pubDate>Mon, 13 Dec 2010 20:48:38 GMT</pubDate>
      <dc:creator>LindsayG</dc:creator>
    </item>
    <item>
      <guid isPermaLink="true">http://my.braintumorcommunity.org/discussions/ependymoma/2010/11/11/ask-the-expert-session-on-ependymoma-tumors</guid>
      <title>"Ask the Expert" Session on Ependymoma Tumors</title>
      <link>http://my.braintumorcommunity.org/discussions/ependymoma/2010/11/11/ask-the-expert-session-on-ependymoma-tumors</link>
      <description><![CDATA[<font size="2"><font face="Arial">Join NBTS for an <b>&quot;Ask the Expert&quot; Session on Ependymoma Tumors</b>. We have pre-recorded a webinar on ependymomas and encourage anyone interested to watch it and then to join our live &quot;Ask the Expert&quot; webinar on November 30th (11 - 12 PM PST). Please submit your ependymoma questions ahead of time here or email them to info@braintumor.org<br />
<br />
For more details and to watch the recorded webinar please visit <a class="SmlLinks" href="http://www.braintumor.org/patients-family-friends/conferences-workshops/educational-programs.html" target="_blank">this page</a><br />
<br />
Click<a class="SmlLinks" href="http://www.braintumorcommunity.org/site/Calendar?id=102481&amp;view=Detail" target="_blank"> here</a> to register for the &quot;Ask the Expert&quot; session<br />
<br />
As usual, if you have questions please post them here or call 800.934.2873</font></font>]]></description>
      <pubDate>Thu, 11 Nov 2010 19:45:29 GMT</pubDate>
      <dc:creator>Patient Services Team</dc:creator>
    </item>
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      <guid isPermaLink="true">http://my.braintumorcommunity.org/discussions/ependymoma/2010/07/14/ependymoma-back-again</guid>
      <title>Ependymoma back again...</title>
      <link>http://my.braintumorcommunity.org/discussions/ependymoma/2010/07/14/ependymoma-back-again</link>
      <description><![CDATA[Anyone else have an ependymoma with anaplastic features?  My first surgery/radiation was about 9 years ago and at the 5 year anniversary mark, the area that was thought to have been scar tissue was actually tumor (it had reseeded and starting growing).  I think I've been in complete denial that I had anything at all, not making a big deal out of anything and saying everything was fine.  Now that I am having a second surgery, I feel sad/angry and also confused on what to tell others or what I should be feeling as my surgery approaches.  Any advice or similar experiences?  Thanks!]]></description>
      <pubDate>Thu, 15 Jul 2010 00:41:43 GMT</pubDate>
      <dc:creator>okienmn</dc:creator>
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