http://my.braintumorcommunity.org/discussions/end-of-life--hospice en-us http://my.braintumorcommunity.org/discussions/end-of-life--hospice/2012/02/13/anyone-else-with-a-loved-one-in-hospice-care http://my.braintumorcommunity.org/discussions/end-of-life--hospice/2012/02/13/anyone-else-with-a-loved-one-in-hospice-care Just wondering if anyone else is watching their loved one die a slow cruel death?  He has had the symptoms of someone close to death for several weeks now.  He will be 64 next month.

Jennifer]]> Mon, 13 Feb 2012 18:00:12 GMT jenleigh http://my.braintumorcommunity.org/discussions/end-of-life--hospice/2011/11/08/so-grateful-for-hospice http://my.braintumorcommunity.org/discussions/end-of-life--hospice/2011/11/08/so-grateful-for-hospice
Jen]]> Wed, 09 Nov 2011 01:33:59 GMT jenleigh http://my.braintumorcommunity.org/discussions/end-of-life--hospice/2011/08/07/forums-temp-down-aug-8th http://my.braintumorcommunity.org/discussions/end-of-life--hospice/2011/08/07/forums-temp-down-aug-8th Hello!

Awhile back we told you about our plans to launch a new and improved discussion forum section. We are happy to report that the new discussion area is almost here! The switch to the new discussion forum will take place on Monday August 8th. Please note that the forums will be temporarily unavailable on August 8th while we transfer content from the old system to the new system during that down time. You will be able to read all previous posts in the forum area during the short down period, but will not be able to post any new topics. We hope to make the transition as smooth as possible and appreciate your patience during the upgrade. We look forward to hearing your feedback about the new system when it’s up and running. Please feel free to call the Patient Services Line at 800.934.2873 or email us at info@braintumor.org with any questions.

Thanks everyone!

Patient Services Team]]> Sun, 07 Aug 2011 23:02:21 GMT Patient Services Team http://my.braintumorcommunity.org/discussions/end-of-life--hospice/2011/07/13/forum-upgrade-scheduled-for-august-8-2011 http://my.braintumorcommunity.org/discussions/end-of-life--hospice/2011/07/13/forum-upgrade-scheduled-for-august-8-2011 Dear Community,

We have scheduled an upgrade to our current forums for Monday, August 8th, 2011. On this date all topics and replies posted in the forums will be moved to a new upgraded format. When you navigate to the My.BrainTumorCommunity forum page you will land on a different looking page than you are used to starting Monday, August 8th. We believe the new format will be easier to use and we will have a number of features available to you that are not available in this current version. To help you learn the new format we will set up a question and answer discussion in the new format titled, "Welcome to Discussions: Q & A." It will be located at the top of the page. Feel free to post any questions you have or review FAQs others are asking.

Additionally, you can also feel free to contact our Patient Services team at 800.934.2873 or at info@braintumor.org. Please note that your post history will be maintained with this upgrade. Your post count will not change and all your old topics and replies will be accessible in the new format.

We thank you for being a member of our interactive online community!


Sincerely,

Patient Services Team
]]> Wed, 13 Jul 2011 20:49:55 GMT Patient Services Team http://my.braintumorcommunity.org/discussions/end-of-life--hospice/2010/10/27/confusion-and-how-to-handle http://my.braintumorcommunity.org/discussions/end-of-life--hospice/2010/10/27/confusion-and-how-to-handle
She is undergoing radiation with the intent that a decision will soon be made for chemo, assuming the brain tumors have shrunk. Prognosis remains poor, 3-6 months.

She is experiencing severe lower body pain and they have rotated between roxycotin, IV morphine and morphine patch. She has no vision or hearing issues or headache. She has gone from sharp as a tack to completely confused. She knows people, she can read, identifies objects, has great memory. She cannot connect a person with a current activity. She knows that she is in a care facility, but she thinks it's a party. She always was a happy personality, she remains so, even more.

Her sister (my Mom) and I think this is wonderful, if she did have her faculties about her, she would be miserable about her situation. Her son is guiding her medical choices, and although I may not agree, I understand and support his desire to try everything to maintain quality of life for her.

Where we are very conflicted: Her husband and children feel that they should correct every erroneous statement that she makes. So if she says she went dancing, they tell her, "no, you are and have been in the hospital." Two minutes later she'll forget this, say something else, and the same circular conversations continue. She is frustrated by these conversations, is sad when she is corrected and truly enjoys the opportunity to talk about events, even when they haven't occurred.

She does indeed know somethings wrong with her reasoning, she'll even say it, but is VERY happy. Almost childlike. I've worked with Alzheimer's patients and always felt it best to agree with their FEELINGS, whether right or wrong, unless danger was involved. Is this the same?

TIA!]]> Wed, 27 Oct 2010 18:55:46 GMT caco http://my.braintumorcommunity.org/discussions/end-of-life--hospice/2010/10/24/agitation http://my.braintumorcommunity.org/discussions/end-of-life--hospice/2010/10/24/agitation Thanks]]> Sun, 24 Oct 2010 21:46:13 GMT jennyf http://my.braintumorcommunity.org/discussions/end-of-life--hospice/2010/08/30/after-treatment-radiation-and-temodar http://my.braintumorcommunity.org/discussions/end-of-life--hospice/2010/08/30/after-treatment-radiation-and-temodar Mon, 30 Aug 2010 11:05:51 GMT jab56 http://my.braintumorcommunity.org/discussions/end-of-life--hospice/2010/07/29/excellent-book-on-hospice-and-end-of-life-issues http://my.braintumorcommunity.org/discussions/end-of-life--hospice/2010/07/29/excellent-book-on-hospice-and-end-of-life-issues My Mom was diagnosed with GBM4 in April. She has decided not to take any more treatment after a recent MRI showed regrowth of her tumor
I have found an excellent book called The Final Journey by a hospice nurse, Maggie Callahan, that I highly recommend for family members, friends and caregivers.
It is available through Amazon.com.
This book answers many of the questions and addresses the concerns I had about hospice and what that entails and what to expect for my Mom when she dies.
I was so glad to have found this book and I hope you all find it helpful as well.
Best to everyone,
Jenny
]]> Thu, 29 Jul 2010 21:45:02 GMT jennyf http://my.braintumorcommunity.org/discussions/end-of-life--hospice/2010/06/24/meerkat---judi http://my.braintumorcommunity.org/discussions/end-of-life--hospice/2010/06/24/meerkat---judi Oh, how I wish I had something more comforting to say and I could DO something.
I am praying for you.]]> Thu, 24 Jun 2010 10:11:03 GMT nancy again http://my.braintumorcommunity.org/discussions/end-of-life--hospice/2010/06/22/end-stage-gbm-iv-and-hospice http://my.braintumorcommunity.org/discussions/end-of-life--hospice/2010/06/22/end-stage-gbm-iv-and-hospice
His oncologist said without treatment and depending on several factors he would only have 2 to 4 months. We seen his primary care doctor today and he is refering him to hospice.

It is overwelming I have no idea what to expect. I have read brain hospice and it seems like he has so many of the endstages just from the effects of the surgery and radiation neurosis.

Has anyone dealt with the last 2 to 4 months.

Sorry this is so long.

Thank you Sharon]]> Wed, 23 Jun 2010 00:25:13 GMT abbeylvr1 http://my.braintumorcommunity.org/discussions/end-of-life--hospice/2010/06/17/mixed-teratomia-germ-cell-tumor-of-the-brain http://my.braintumorcommunity.org/discussions/end-of-life--hospice/2010/06/17/mixed-teratomia-germ-cell-tumor-of-the-brain Fri, 18 Jun 2010 03:22:07 GMT rezmom http://my.braintumorcommunity.org/discussions/end-of-life--hospice/2010/04/29/daily-uncertainty-wearing http://my.braintumorcommunity.org/discussions/end-of-life--hospice/2010/04/29/daily-uncertainty-wearing
I am again teaching school, have three girls ages 15, 13, and 9 and I am often too busy taking care of the house, the kids and my jobs and it feels like I don't have enough time and energy left to really have the quality time daily with my husband that I should.

Therefore, I am constantly feeling guilty and overwhelmed.

I would love to hear from other caregivers as to how they cope with managing it all.

Liz]]> Thu, 29 Apr 2010 22:11:13 GMT liz http://my.braintumorcommunity.org/discussions/end-of-life--hospice/2010/03/28/how-can-i-help http://my.braintumorcommunity.org/discussions/end-of-life--hospice/2010/03/28/how-can-i-help I found out on Friday that my ex boyfriend whom I had lived with for 5 years and haven't heard from for 12 years has had a brain tumour removed- a GBM?
I have spoken on the phone with him and his voice was very slurred- he described how sudden it all was and how he has to wait for 6 months now to be re scanned to see if it will re occur.
Can anyone help me with understanding exactly what this is and what his outlook might be? The only symptoms he had was walking with a listing movement and his Dr said it was sinusitis for 6 months before he finally got a scan. I don't know how best to assist him and I am really concerned that I don't intrude. Does anyone have any advice? He is 50 and lived for his golf.
Kits
]]> Sun, 28 Mar 2010 18:05:50 GMT Kits http://my.braintumorcommunity.org/discussions/end-of-life--hospice/2010/02/27/what-to-expect http://my.braintumorcommunity.org/discussions/end-of-life--hospice/2010/02/27/what-to-expect Sat, 27 Feb 2010 05:47:24 GMT John in Lutz http://my.braintumorcommunity.org/discussions/end-of-life--hospice/2010/02/02/end-of-life-questions http://my.braintumorcommunity.org/discussions/end-of-life--hospice/2010/02/02/end-of-life-questions Wed, 03 Feb 2010 01:28:09 GMT Patient Services Team