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Member Since: '10
Joni
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Joni
replied to topic:
My husbands battle is over
Nancy, I am so sorry for your loss. Please accept my deepesy sympathy.
Joni
replied to topic:
Bob more tired and cold
Yes, my husband is also cold all the time. He wears gloves indoors to keep his hands warm. And he also has increased memory problems. He just went back on Avastin after a 5 month period and back on de...
Joni
replied to topic:
Four years
My heart goes out to you - it is bad enough to have a spouse battling this terrible disease; I can't even imagine going through it with any of my children. Take advantage of every day!
Joni
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How do you deal with the emotional and physical stress of being a caregiver
Jerangi, I can sympathize and relate to you so much. My husband was diagnosed with GBM in spring of 2010 and it is definitely a roller coaster! I make taking care of myself a high priority so I can h...
Joni
replied to topic:
Need Advice on Breaking the News to Family and Friends
Family0418,
If you are not familiar with Caringbridge.org, it is a wonderful way to keep family and friends updated on what is going on and to advise them what you need at any given time. You set u...
Joni
replied to topic:
My cousin passed yesterday...
JuanML, I am so sorry for your loss. My deepest sympathy to you and your family.
Joni
replied to topic:
No idea what to expect
My husband was diagnosed with a GBM in April of 2010, and although everyone is different, I can share our experience thus far. We were initially told he had 6 mos - 2 yrs to live but he is still here!...
Joni
replied to topic:
My Sister Has Passed
I am so sorry she lost her battle! I lost my sister to breast cancer 6 years ago and I still miss her. Deepest sympathies to you and your family.
Joni
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First MRI after end of initial treatments
We were told the same thing, as the brain has been through so much trauma and it is difficult to distinguish between tumor and scar tissue. Did she have surgery?
Joni
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Father with Glioblastoma
Pete, Where in upstate ny is your mom? we are near Syracuse.
Joni
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Husband diagnosed GBM IV on 3-08-2011 59 y/o
Patty, I am SO sorry to hear your husband lost his battle. My deepest sympathies...
Joni
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"Take Time For Yourself"
I am definitely of the opinion that you need to also take care of yourself as a caregiver! I know there will be a point that I will need to be home with my husband 24/7, but for now, I need to get out...
Joni
replied to topic:
Father with Glioblastoma
First of all, my condolences to you and your family on the news of this diagnosis. I went through the same thing 2 years ago when my 54 year old healthy husband received the same news and had emergenc...
Joni
replied to topic:
Where to start...?
JuanML, I am so sorry for your family and your cousin. You are wise to get as much information as you can. There are so many factors involved and it affects everyone affected differently. Did the ...
Joni
replied to topic:
My father has passed
Jennifer,
I am so sorry for your family. I also understand your relief - it is really hard to live like this. Best wishes moving forward.
Joni
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