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    steven5  says:
    Goldfish, If you don't have a positive attitude, the negatives that surround begin to take over.  You get overwhelmed, life tanks,...

     
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    46 Posts
    What color are brain tumors?
    By Linda S.   
    By that I mean (forgive me breast cancer sufferers) that I get so tired of seeing those pink ribbons EVERYWHERE and what is ever said about brain tumors?? or how much research is done or how many races are run to raise money?  Very little I'm afraid.  I hope I don't offend anyone I just need to vent MY frustration.  At the support group I went to last week the young woman mentioned this and I agreed.  I applaud what has been done in Susan Komen's name but there are plenty of our husbands, wives, etc. who are going through hell as well.  Thanks for listening.
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    Visit Freda's profile
    24 Posts
    Freda  says:
    The color is gray and there are events and fundraisers, but of course nothing close to what goes on for breast cancer. I don't know the statistics but I believe far more people (and their families) suffer from breast cancer.  The thing is, this in no way minimizes our pain, or the need for money and research for a cure.  (That said, I think you are part of a growing group who think the pink thing has really been overdone.)
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    Visit Nancy's profile
    38 Posts
    Nancy  says:
    I agree, Linda. Been thinking the same thing.
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    Visit johnspip's profile
    33 Posts
    johnspip  says:
    Over the last two years, whenever I get asked for a donation toward breast cancer research, or even prostate cancer, my reply has been, "No, I'm currently paying for brain cancer."  If only they knew how literal I was being.
    I think many more people are affected by breast cancer than brain cancer, but there are so many survivors of breast cancer that continue to bring awareness about that particular disease.  Not many people want to even talk about brain cancer.
    Even my 12 yr. old son's football team has been wearing pink all month for breast cancer month.
    Absolutely no disrespect intended to those who have undergone or are currently facing treatment for breast cancer.  It is frustrating that there is so much emphasis there though.
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    Visit Linda S.'s profile
    46 Posts
    Linda S.  says:
    my feelings exactly.  I didn't ever give it a thought, to be honest, until my husband was diagnosed with it in mid-June.  I talked to my sons about it last night and would love to have a fund raiser for research, maybe in the spring.  My youngest does stand up (as a side line)knows a lot of people, as do I and we'll see.  It'd be the first for me. 
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    Visit runner's profile
    21 Posts
    runner  says:
    I had my resection for an oligodendronglioma tumor back in Feb of 2010, everything is going well for me with no cancer. But, this past month with the breast cancer awareness signs everywhere I Started wearing my brain cancer bracelet and pin. There have been no questions yet but I'll be willing to talk about it with them. I like the comment about donating to brain cancer instead of breast cancer. I'll do that
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    Visit steven5's profile
    325 Posts
    steven5  says:
    Freda,

    I have asked if the gray bracelets could be made available at the local AAA ( auto club branches) for a donation to NBTS.   It has not gone anywhere yet.  But I am trying.  There is a walk also being talked about at AAA.

    Steven

    PS: I work for AAA SNE.
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    Visit Linda S.'s profile
    46 Posts
    Linda S.  says:
    That is wonderful!!! Are you a runner?? My husband ran 6 days a week before he collapsed in June while running.  I know he misses it.  He had done 3 NY marathons in his time.  I will look into the bracelets and would gladly wear one!  The more I think about having a fund raiser, the more it makes sense.  I wouldn't use my husband's name tho' as it'd embarrass him I'm sure.  Hooray for you!!!
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    Visit Linda S.'s profile
    46 Posts
    Linda S.  says:
    Steven, I live in CT and wonder where I could get ahold of one.  Maybe I'll ask at Smilow next week when we go.
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    Visit runner's profile
    21 Posts
    runner  says:
    Yes.I do run but not much since my seizures, they seem to be under control
    now so excuses. I ran the NYC marathon too. Last year I ran the Chicago
    marathon for the ABTA and raised money for them - 10 months to the day
    after my resection. I'm not sure of the price but go on their website,
    ABTA.com or something close and look in the store section for the
    bracelets, they have pins too. Tell your Hubby to suck it up, we're all
    family after things like this happen to us. It defines us, not disables us.
    Let him know when he's ready to run a marathon, we can do Hartford, I'll run with him, he'll
    beat me in the race but we'll both beat brain tumors.

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    Visit Linda S.'s profile
    46 Posts
    Linda S.  says:
    I don't think he has the energy to run but he does walk around the neighborhood mornings when the weather is good.  I will check out the website. Thanks.
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    Visit tkgreen's profile
    13 Posts
    tkgreen  says:
    I've been wondering about this also. Thanks for posting...and thanks for everyone's responses.
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    Visit steven5's profile
    325 Posts
    steven5  says:
    Linda S,

    I began to run again last July.  It was the first time in over 5 years I was able to run.  The distance is still limited to a mile, and is not as fast as before,  I tell everyone to be grateful for what you can do--worrying less about what you can't. 

    When I came home from the hospital, I could not climb over 3 stairs; I  could not lift over 3 lb; I could not lift over my head.  I am grateful I can do my 30 minute workout every day.

    Steven
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    325 Posts
    steven5  says:
    Linda S,

    I won the bracelet on  the NBTS website.  Lately, I have been floating some ideas to make them more available.  No response from NBTS yet.  It would be an interestng concept to pass them out to family and friends of brain tumor patients in the hospital.  The AAA bracelet idea is just an idea at this point.

    Steven
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    Visit Linda S.'s profile
    46 Posts
    Linda S.  says:
    I am grateful that Jim walks most mornings, weather permitting and he takes the cell phone with him.  He walks about a half hour or so.  Good for you.  We must do what we can & not worry about what we can't do.  I'm just so happy he is here with me.  He was going to retire in a year when he turned 66..........so much for plans, right?  Tomorrow we're going to try Scrabble.  I play on FaceBook and really enjoy it.  I also am living my normal, active life around Jim.  He was never a social butterfly anyway but hey, opposites attract.  Am off to bed to read.  Take care Steven.
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    Visit Joni's profile
    46 Posts
    Joni  says:
    Here is a website to purchase 50 gray bracelets for $26. They can be sold for fundraiser or just given out to your friends for support, which is what I did. http://www.fundraisingforacause.com/gray-silicone-bracelets.html
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    Visit Linda S.'s profile
    46 Posts
    Linda S.  says:
    Thanks Joni.....I bookmarked it for future reference.  The more I think about a fundraiser the more I like the idea.  My son does standup as a side line and knows tons of people, as I do & I think it'd be fun to plan for the spring!!!  Linda
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    Visit Anonymous's profile
    11 Posts
    Anonymous  says:
    Head for the Cure Foundation is a well-established fundraising non-profit for brain cancer.

    They have had recent marathons in Kansas City, Missouri, and in Lawrence, Kanas.

    They may have something in your area(s); or you could contact them and get something going in your area. A friend of mine who is a federal public defender in Kansas City recently ran in one of those marathons. The public defenders office organized as a group, and all participated at some level---either as runners, walkers, or volunters.
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    djG_Caregiver/Spouse

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