Login | Register | Help
Blog Search
Blog Latest Comments
I am a dental hygienist and have worked for 37 years and am suffering with a mid-brain meningioma. I have taken thousand...
by Anonymous on Saturday, April 21, 2012
Did this study consider the people that have a genetic gene mutation that will cause them to have this type of tumor eve...
by Anonymous on Thursday, April 19, 2012
Hi,Am Mis Kachi! !(kachi_umar@live.com) please how are you! hope you are fine and in perfect condition of health.I went...
by Anonymous on Sunday, Febuary 26, 2012
Hi,Am Mis Kachi! !(kachi_umar@live.com) please how are you! hope you are fine and in perfect condition of health.I went...
by Anonymous on Sunday, Febuary 26, 2012
How many other wonderful treatments are out there that were not supported for a phase III that aren't even known about? ...
by jpsister on Friday, Febuary 24, 2012
Page  of  Total Items: 467

firstprevnextlast

This blog features posts from multiple departments of the National Brain Tumor Society. From keeping you updated on the research advancements, to providing insight into our public policy advocacy efforts, we want to keep you informed of how NBTS as an organization is here for you. Questions or comments? Email questions@braintumor.org.
Community Admin
Inspiration from the Race for Hope
Posted by Community Admin
Tuesday, November 08, 2011
Comments (4)
(Today's blog comes from the Executive Director of the National Brain Tumor Society, N. Paul TonThat.)

N. Paul TonThat, NBTS Executive DirectorI have been pondering what to share with you all on my first blog. Do I tell you all some of what we are working on? Perhaps why we think that systems biology and other integrative cancer approaches are so promising and yet needs maturity and further investment.

Then I met Bailey last Sunday in Philadelphia. Her father handed me a check for $100 and Bailey explained what it is for. I asked her to send me what she told me in her own words because I would not be able to do her justice. She captures both the hope all of us feel as we fund promising brain tumor research and the fear we all feel that the disease is winning. I know that it is not winning as long as we all continue to fight.  We do however need to more quickly translate what could be in the lab and clinic to what should be in the patient rooms.

Letter from Bailey:

My name is Bailey Waskiewicz and I am 10 years old. I live in Bensalem, Pa., and I am in 5th grade at Our Lady of Grace school. When I was 8 I found out that my mom had a brain tumor in 1998 and had surgery to get it out. I was so sad for my mom, I decided I wanted to donate money to brain tumor research. I started saving most of my money that I got for birthdays and Christmas. I told my mom I was saving it for brain tumor research, but I think she thought I might want to go spend it. In October 2010, my mom was diagnosed with a new brain tumor. I am very scared for her and I hope she is going to be ok. On Sunday morning before we left for the brain tumor walk, I brought all my money to the kitchen and dumped it on the table and told my mom and dad I wanted to bring it with me to donate. My mom was so happy and she cried, and she couldn't believe I had saved $100 and wanted to donate it. I hope I can save up a lot more to donate next year and I hope there is a cure for everyone soon.  

From,
Bailey
 
  • Visit Anonymous's profile
    Anonymous: Thank you Bailey for your letter and donation! You sound like an awesome girl and I know your parents are so proud of you! When you are scared about what it happening with your mom, just say a prayer and ask God to help you. He is always listening. I will pray for your mom and whole family. Andrea
     

  • Visit Noche's profile
    Noche: I just found this website sitting at the UTHSC in Neurology Now while my husband, a survivor of a craniophryngioma is getting a neurological assessment. I will be eager to
    connect with other caregivers. This is the most difficult thing I have ever had to do in my
    life. You would think that after 10 years it would have gotten easier by now.
     

  • Visit Anne at NBTS's profile
    Anne at NBTS: Noche, you may want to visit our discussion forums, specifically those for caregivers, family, and friends - http://my.braintumorcommunity.org/discussions/caregivers-family-and.
     

  • Visit keepingthefaith's profile
    keepingthefaith: What an inspiration! Bailey is a special person and her parents have a lot to be proud of raising such a compassionate child. Sad that children have to go through these experiences at all as well as the person with cancer of course but it is inspiring to see a young person taking action in such a positive way. I hope for the best for Bailey's mom. I am just learning about cancer and more specifically brain cancer. I will be finding ways to get involved like Bailey.