I haven't been on this web site in awhile and just got caught up with all of the postings. Dar, great news about a stable MRI, you too Terri. My husband has been on avastin for 19 months and nex...

Darlene,
I'm very familiar with the symptoms of weaning off of steriods as my husband was weaned off twice. First of all, being on steriods generally weakens the large muscle groups of the body....

Hi Jen,
So sorry to hear that your husband's tumor started to grow after being stable for awhile. My husband had a regrowth from radiation and temodar within six months of treatment. He started...

What your sister went through with radiation and temodar is the standard of care and as far as I know, everyone is put on that treatment initially. Some people do well on radiation and temodar and so...

Yes your right GBM's are always a grade IV. We were told by the surgeon at Johns Hopkins that statistically the prognosis was between 12 to 15 months and also to get our affairs in order. There a...

Hi Jill,
I have bookmarked on my computer a website called Science Daily and under the brain tumor link is updated information on the research affecting brain tumors. I've provided you a link to ...

Hi Renee3233,
My husband has an inoperable GBM, did radiation, temodar, tumor grew in 6 months, was put on avastin and he has been doing well for over 17 months and counting. A women we met at our Ca...

My husband has cold hands as well, especially the right hand which is where all of his symptoms are located (left thalmus brain tumor affects right side of body). We have discussed this with the neur...

I agree about the steriods as well. My husband was on them for a week after his biopsy and then started on 16mg per day when he had his radiation, reduced weeks later down to 4mg, and stayed on 4mg f...

I agree that you should get a second opinion. Oncologists are usually for all kinds of cancers, and do not specialize in brain cancer. However, there are neuro-ocologists (specializing in the brain ...